UPDATE – Epi-Pen and Auvi-Q Expiration Dates

(Note: see my latest post about the cost of Epinephrine here)

I wrote to both Mylan (EpiPen) and Sanofi (Auvi-Q) and shared my previous post “Epi-Pen and Auvi-Q Expiration Date Frustrations” along with the wonderful and informative comments I received from readers and received the following responses I wanted to share here.  Please, depending on which product you purchased with an expiration date that was unsatisfactory, read below (for Auvi-Q purchasers, you may be able to get a savings card that offers an up to $400 benefit and for EpiPen purchasers, be sure to call customer service).  Both companies understand that expiration dates are very valid concerns for purchasers of epinephrine auto-injectors.

AuviQandEpiPen
Child doses of Auvi-Q and EpiPen

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Epi-Pen

From makers of the EpiPen, Mylan Specialty:

To help facilitate consumers providing us with the necessary information, please share our customer service contact information. Consumers can call Mylan Customer Relations to speak with a representative at 1-800-395-3376 or email at Customer.Service@mylan.com.

We also wanted to provide additional information related to product expiration dates to support you and your readers.

When picking up epinephrine auto-injector prescriptions, we encourage patients or caregivers to check what is dispensed at the pharmacy prior to leaving. If there are concerns about the expiration date, they should speak to the pharmacist immediately.

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Auvi-Q

From makers of the Auvi-Q, Sanofi:

Patients or caregivers who, within the last 31 days, purchased an Auvi-Q that expires in less than 12 months are eligible to receive a savings card with a maximum benefit of $400 off one two-pack of Auvi-Q for each Auvi-Q purchase that meets the terms and conditions. Savings cards are valid for useJanuary 1 – June 30, 2015.  Patients or caregivers who purchased an Auvi-Q in the past 31 days with 6 months or less of dating may receive a replacement Auvi-Q or they can opt to receive a savings card.  For more information, including terms and conditions, patients or caregivers should call Sanofi Customer Service at 1-800-633-1610.

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Our collection of expired Epi-Pens and Auvi-Qs, the ones in the belt are current through early next year.
Our collection of expired Epi-Pens and Auvi-Qs, the ones in the belt are current through early next year.

In the meantime, it is my understanding that both companies are following issues about epinephrine expiration dates and are taking all consumer comments and concerns into consideration.  They want to hear about issues people may or may not be having as they get prescriptions filled.

No matter what hurdles you face in filling the prescription, by the way, you need to be carrying epinephrine.  See this great post by “Marketing Mama” Missy Berggren: Why do people need to carry EpiPens? Why not just call 911?

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Disclosure: I attended Mylan’s Summit in April but my opinions are my own – more detailed disclosure here and here.  Sanofi and Mylan have both been sponsors of the Food Allergy Bloggers Conference, of which I am a co-owner.  My opinions, as always, are my own and are not representative of my position at Food Allergy Bloggers Conference LLC or the real or perceived benefits from either company.  Representatives from both will be at the conference this September 2014.

Chocolate Sunbutter Fudge by EGW

My daughter is hard at work at her own cookbook, or the “Allergy Friendly Snack Book” as she calls it.  I love seeing her practicing her writing as she gets ready to enter first grade next month (she turns 6 on the second day of school this year) and just owning the idea that she can write a book if she wants to.  This is her first recipe in her book, she calls it “Fudge Cobbler” because at the moment the word “cobbler” is her favorite new kitchen term (we made some actual Apple Cobbler the other day when I didn’t feel like wrestling with my usual broken pie crust) but also just refers to it as “fudge.”  Her recipe is pictured below, I’ve expanded a little more on her steps but even at age 5, heating the ingredients aside, there’s a lot for a kid to do hands-on with measuring, mixing, and pouring.

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She wrote this up in May so I’m behind in posting it but we’ve had a busy summer.

Supplies

Metal saucepan and metal bowl (or double boiler)

Small baking dish or pan lined with parchment paper

Spoon and 1/4 measuring cup

Ingredients 

1/4 cup Enjoy Life Chocolate Chips (top 8 allergen free)

1/4 cup Brown Rice Syrup (we use Lundberg brand)

1/4 cup SunButter (or other sunflower seed butter)

Vegan and Nut Free Fudge

Directions

Heat a saucepan (or double boiler) with water on high on your stovetop and place a metal bowl over the top of the saucepan and melt the chocolate chips (or chunks) over the heat.  Mix in sunflower seed butter and brown rice syrup once chocolate is melted until combined.  Pour the mixture into a pan lined with parchment and freeze (or refrigerate if you’re not in a hurry) until firm.  Slice into portions of your choice (pictured are small bite sizes).

I think these are chewier than a normal fudge because of the brown rice syrup – if you’re looking for that spot-on fudge texture, the wonderful Elizabeth DiBurro at EBL Food Allergies has an amazing fudge recipe that melts in your mouth (we don’t have a microwave and did fine with her recipe on the stove) but there’s probably room for both varieties in your kitchen.

And E, if you’re ever reading this down the line, know that  I’m so proud of you and love that what is often a challenge for me (cooking and baking) is something you approach with gusto and excitement.  Seeing you and your brother grow, learn, and embrace this life is one of the keenest joys I have ever known.

Disney’s “Frozen” Party Favor Idea

If you enjoyed my lightsaber valentine idea (glow sticks and Star Wars valentines), I have another idea that my daughter helped me come up with as we have been planning her “Frozen” themed 6th birthday.  When it worked so well she asked me to share it here.  Who knew the day would come when she’d say “can we post this on your blog, Mom?”  She is writing her own cookbook right now and you may even see some of those recipes in this space.

Frozen Bubble Favors

This doesn’t work with all cupcake rings, the plastic needs to be a little bit pliable, but it did work with the “Frozen” cupcake toppers we’d purchased on Amazon (amazon affiliate link or ebay search link) and these mini bubble bottles from Oriental Trading (search: hexagon bubble bottles and choose your favorite color).  Just work the ring over the top of the bubbles and there you go.  Easy peasy way to give a theme to the bubbles but also works as a food-free idea for party favors.

(For R’s 4th birthday we’re doing Chinese paper yo-yos and Power Rangers rings – his were too sturdy to work with bubble bottles.  I love August birthday planning!)

Clark County School District Procedures/Guidelines for Managing Potentially Life-Threatening Allergies

Thank you to Dana and Duane Gordin, Principal Paula Naegle, and other parties that put so much hard work into making the CCSD Guidelines for Potentially Life-Threatening Allergies a reality.  These guidelines were 2 years in the making and made possible with support from the Food Allergy Guidelines Committee Members, key leaders of CCSD including the Board of Trustees and Superintendent, Food Allergy Research & Education (FARE), and those who participated in the Nevada FAAN/FARE walk in previous years.  The guidelines I’ve linked to below are the product of a FAAN/FARE walk grant and with Dana’s permission, I wanted to make the resource available here for download:

2014 CCSD Food Allergy Manual (pdf download) “Clark County School District Procedures/Guidelines for Managing Potentially Life-Threatening Allergies”

A copy has been sent to schools in Clark County (the district was ranked the 5th largest in the nation in 2012) as well as to local allergists.  The guidelines are 79 pages and cover everything from classroom activities to food service and laws of note.

Some highlights as I look through the document and am encouraged about the guidance Southern Nevada teachers, nurses, and other school employees receive:

  • “The emotional, as well as the physical, needs of the child must be respected.” – pg. 7
  • “Avoidance is the key to preventing a reaction.” – pg. 9
  • “Remember, students with food allergies are children, first and foremost. Do not ask them if it is acceptable to deviate from any of their individual plans. Be aware of signs of anxiety or bullying.” – pg. 11
  • Avoidance Measures for Insect Venom/Stings Allergic Reactions – pg. 13 (tips new to me included avoiding wearing blue and yellow or floral clothing and ensuring garbage is properly covered and away from play areas)
  • CCSD Regulation 5150 covers self carrying medications while CCSD Regulation 5157 covers nutrition concerns.
  • Page 24 has a school nurse checklist that would be handy for any parent meeting with a school’s nurse at the start of the school year.
  • Page 32 has a parent checklist for a school nurse to provide to a parent
  • “Every single person plays an important role in preventing food-allergic reactions, including the child with the food allergies.” – pg. 34
  • Page 35 has a teacher checklist.
  • “The student must not be required to wipe down his/her own area prior to eating to avoid accidental exposure to or ingestion of allergens.” – pg. 37
  • Page 43 includes the recommendation that cleaning supplies be marked specifically so that, say, a mop bucket used when mopping up peanut butter is not later used to clean an area meant to be free of a given student’s allergen. (A great detail I would not have considered.)
peanutfreesanitizer
Photo taken at Principal Naegle’s school in Clark County and included in the Guideline packet
  • Page 57 includes a bus driver checklist.  CCSD guidelines also prohibit eating on the bus (with a diabetes exception of course).
  • Page 62 has a resource regarding reading food labels.
  • Page 63 discusses “Constructive Classroom Rewards” and begins: “Rewarding children in the classroom need not involve candy or other foods that can undermine children’s diets and health and reinforce unhealthful eating habits.”  It concludes with two pages of suggestions of alternative rewards, including everything from privileges to trinkets/tokens.  The recommendations are taken from the Healthy Schools Campaign and adapted from the Center for Science in the Public Interest.
  • Page 73 references epinephrine auto-injectors Adrenaclick, Auvi-Q, and Epi-Pen, which is helpful since school employees may be familiar with one and not others as they go through the process of assisting families and students.

Dana and Duane Gordin are Southern Nevada food allergy advocates that for 5 years worked to direct local food allergy walks (first through FAAN, the Food Allergy Anaphylaxis Network, and then through FARE, Food Allergy Research and Education) in addition to testifying regarding stock epinephrine in Nevada and more.  One thing I didn’t know until I met Dana was that money raised by the national FAAN/FARE organization didn’t just go to funding walk operations and research activities, a small portion is used for local walk grants.  The Gordin family saw the need for training and education here in Clark County and worked hours upon hours to help make it happen.  Their eldest son graduated high school last month and their younger son is in high school so the impact of these guidelines is a wonderful parting gift!

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Updated July 15, 2014 – Debbie Bornilla, who first brought the then-FAAN walk to Las Vegas as a director and co-leader of our local Food Allergy Parent Education Group (FAPE) provided me with the full list of people that contributed to these guidelines.  Thank you all!

Cynthia Alamshaw, Principal
DeAnn Baker, Nurse
Virginia Beck, Director of Food Services
Abby Berhe, Operations Coordinator
Debbie Bornilla, Parent & FAPE Co-Leader
Gina Clowes, Director of Education FARE
Betsy Fuentes, Food Services Coordinator
Eleanor Garrow, VP Ed & Outreach FARE
Doug Geller, Director I of Transportation
Duane & Dana Gordin, Parents & FARE Walk Directors
Michael Harley, Chief Officer Compliance
Vicki Herman, Related Services Coordinator
Sally Jost, Director of Related Services (Committee Lead)
Rod Knowles, Principal
Connie Kratky, Eq. & Diversity Coordinator
Kimberly Krumland, Risk Management Coordinator
Gwen LaFond, Director of Guidance
June Likourinnou, Nurse
Karie Mulkowsky, FARE Grants
Paula Naegle, Principal
Daniel O’Brien, Attorney CCSD Legal
Greta Peay, Director of Eq. & Diversity
Irma Pumphrey, Health Services Coordinator
Roseanne Richards, Instruction Coordinator
Lynn Row, Director of Health Services
Bevelyn Smothers, Principal
Denise Thistlewaite, Director of Instruction
Linnea Westwood, Principal